Juliet Le Breuilly

Lead Nurse for Children and Young People's Hospice Services

When did you join Jersey Hospice Care?
I joined in September last year.

How do you make a difference at Jersey Hospice Care?
I joined Jersey Hospice Care to help make a difference to children and families on the island. I know how much of a difference having access to children’s hospice services can make in a family’s life. Living in the shadow of a life-limiting illness can be enormously stressful for families. Having a children’s hospice service on hand means families (parents, siblings and even grandparents) can dip in and out of support when they need it. Having ongoing support often means families can be more resilient and independent despite the challenges they face.

Where did you used to work?
I have two hats – as a children’s palliative Clinical Nurse Specialist (CNS) and as a senior nurse in paediatric intensive care! My children’s palliative CNS role was community based and followed on from working as a senior sister in a children’s hospice in patient unit.

I spent a long time working in intensive care units – cardiac, general and neonatal. This spurred on my interest in palliative care – we would often try to take a parallel planning approach with children who may not survive being critically ill – planning for the worst and hoping for the best. My work involved a lot of time with transplant and organ donation teams in London.

What are your plans / do you hope to achieve in the next six months?
There are two key areas:

Firstly, we really want to share information with everyone about what palliative care for babies, children and young people looks like. A huge number of people assume it is about care at the end of a child’s life and assume it is like caring for small adults. Education and supporting professional knowledge are critical in developing a children’s hospice service.

Secondly, we will continue to roll out our services. Emotional support will continue alongside our outreach and respite provision for 0-18 year olds. We want to raise awareness about the flexibility in how and where hospice care can be delivered. We hope that in all the joint working with other professionals we will demonstrate this in action!

What do you enjoy most about working with Jersey Hospice Care?
I am passionate about working with children and families. I think most people who meet me pick up those vibes quite quickly. I find that Jersey Hospice Care has a real enthusiasm and commitment to patients amongst its staff which suits me and my working ethic really well.

My career has been spent supporting families who are experiencing tremendous challenges. Although my work is about helping families to have choices and to help their voice to be heard, I feel most satisfied when I’ve done all I can for families to have a positive memory of the experience to take away. One example of this was when a family asked me to attend their daughter’s inquest. Although it was an incredibly difficult experience for them, they felt they hadn’t been alone and understood what had happened to their daughter.

What you enjoy doing in your free time?
I have two little people at home – a lot of my free time is spent running around with them. I accidentally found that I enjoyed running about two years ago and have recklessly signed up for the Jersey Half and Royal Parks half marathons.