Children and Young People
Supporting those with life-limiting and life-threatening conditions to live life to the full
However long or short a child’s life may be, Jersey Hospice Care is there to support every member of the family, every step of the way – from initial diagnosis until they no longer need us. Our services are flexible to the needs of you and your child. This means our care is not just provided at the hospice itself, but follows your child in hospital, community or family home – wherever support is needed the most.
Our specialist care for you and your child is free. We will work directly with you and the other health, social care and community professionals and charities involved in looking after your child. Our services are delivered on top of any other support you already get.
We have a growing multi-disciplinary team comprising a specialist doctor, registered children’s nurses, healthcare assistant, complementary therapist, emotional support counsellors and trained volunteers.
What our support might look like
Our services are designed to support children and families with the challenges that having a life-threatening condition can bring. Each child and young person will have bespoke care, tailored to their individual medical, emotional, cultural, religious and spiritual needs.
Support may include
- Nurse led short break day sessions
- Symptom management and pain control
- Nursing including complex care and supervision enabling other members of the family to leave the home
- Specialist advice and education to families and professionals around palliative care
- Activities, play, and music and art for the child
- Support for the family to go out together – for example, accompanying them on outings
- Outings for the child
- Sibling support including activities and outings
- Complementary therapies – such as massage or reflexology for the child and family
- Psycho-social support for the family and young person – including support groups, advocacy, memory making activities and pre and post-bereavement support
- Antenatal referral to enable relationship building with parents and provide the time to listen, reassure, advice and support
We will be appointing a Project Delivery team, who will be responsible for the design and construction of a specialist purpose-built facility for children and young people, with family accommodation, at Jersey Hospice Care. At present we do not have a children or young person’s in patient service.
How can I make a referral?
If you are eligible and looking for support, please get in touch using the initial contact form. You can follow this up and provide more information about your situation by completing the referral form. This can be done by yourself or a health professional on your behalf.
If you have any doubts or concerns about how to proceed, don’t hesitate to give us a call on either of the numbers below. You will also find a written guide to referrals for families and for professionals.
If you require an urgent referral for support, please call us first on either of these numbers: 01534 780 780 and 07797 740 511.
What happens after a referral is made
When a referral is made, it will be assessed by a multi-disciplinary team, including a children’s palliative care doctor, a senior nurse and emotional support worker who will look at both your child’s current level of palliative care and also your child’s prognosis.
We will speak to the people already involved in caring for your child at home or in hospital. We will come and see you at home so that we can discuss your situation and how you are feeling about Hospice’s involvement. We can then make a plan tailored around your child and your wider family’s needs.
Tel : (01534) 780780 or (07797) 740511, Monday to Friday between 09:00 and 17:00
Email : CYP@jerseyhospicecare.com