Children and Young People
Supporting children and young people with life-limiting and life-threatening conditions to live life to the full
However long or short a child’s life may be, Jersey Hospice Care is there to support every member of the family, every step of the way – from initial diagnosis until they no longer need us. Our services are flexible to the needs of you and your child. This means our care is not just provided at the hospice itself, but follows your child in hospital, community or family home – wherever support is needed the most.
Our specialist care for you and your child is free. We will work directly with you and the other health, social care and community professionals and charities involved in looking after your child. Our services are delivered on top of any other support you already get.
We have a team led by specialist nurses in children’s palliative care, play therapist and health care assistant. We can draw support from hospice based specialists such as the complementary therapy team. We also draw on the emotional support team and bereavement counsellors specialised in supporting children.
What our support might look like
Our services are designed to support children and families with the challenges that having a life-threatening condition can bring. Each child and young person will have bespoke care, tailored to their individual medical, emotional, cultural, religious and spiritual needs.
Support may include
- Nurse led respite day sessions at home or at the hospice
- Working with other professionals to manage symptoms and control pain
- Nursing and complex care
- Specialist advice and education to families and professionals around palliative care
- Activities, play, and music and art for the child
- Support for the family to go out together – for example, accompanying them on outings
- Outings for the child
- Sibling support and activities
- Complementary therapies – such as hand massage for the child
- Psycho-social support for the child/ young person and family – including advocacy, memory making activities and pre and post-bereavement support
- Antenatal referral to enable relationship building with parents and provide the time to listen, reassure, advice and support
We will be appointing a Project Delivery team, who will be responsible for the design and construction of a specialist purpose-built facility for children and young people, with family accommodation, at Jersey Hospice Care. At present we do not have a children or young person’s in patient service.
How can I make a referral?
Parents and family members
If you are eligible and looking for support, please contact your child/ young person’s lead professional/ key worker who can complete a referral form. Alternatively please get in touch using the initial contact form.
If you have any doubts or concerns about how to proceed, don’t hesitate to give us a call on the number below. You will also find a written guide to referrals for families.
Please submit a completed Referral form. If you have any doubts or concerns about how to proceed, don’t hesitate to give us a call on our office number below.
What happens after a referral is made
When a referral is made, it will be assessed by a multi-disciplinary team, including a specialist children’s palliative nurse team and emotional support worker who will look at both your child’s current level of needs and also your child’s prognosis.
We will speak to the people already involved in caring for your child at home or in hospital. We will come and see you at home so that we can discuss your situation and how you are feeling about Hospice’s involvement. We can then make a plan tailored around your child and your wider family’s needs.
Association of Jersey Charities
Jersey Hospice Care is very grateful to the AJC for contributing towards the funding of our Lead Nurse in Children’s Palliative Care in 2019 and 2020.
Tel : (01534) 780780, Monday to Friday between 09:00 and 17:00
Email : CYP@jerseyhospicecare.com